Rosanne

I am the proud mother of three wonderful daughters, and my youngest, Leen was diagnosed with Lennox-Gastaut syndrome at a year old. Although challenging at times, life as a Carer of Leen has brought me much joy.

In 1981, my husband and I – together with other parents - started a support group called “IKAROS,” where we research the latest treatments and organize events to raise awareness about epilepsy. We have spent many years looking for help for Leen, including countless medications and surgery. We are hopeful about the future because we have continued to make progress.

As an Epilepsy Ambassador I share our experience and encourage understanding about living well with epilepsy.