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To be diagnosed with epilepsy you need to have had more than two seizures. Anyone can have a seizure at some time in their life. If it only happens once it is unlikely to be epilepsy.
Unfortunately, there is no single test that can tell you whether you have epilepsy or not, and diagnosing epilepsy can be a complex and lengthy process. Doctors are very careful about diagnosing epilepsy. They do not want to say someone has epilepsy when there could be another disorder causing their symptoms.
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Being diagnosed with epilepsy made me stronger. It made me decide then and there when I was diagnosed that if I was to continue living a fully active and normal life that I had to take things into my own hands.
Marion, France
To help doctors decide if someone has epilepsy they collect information about their patient's general health, ask about what happens to them when they have a seizure and look at the results of tests.
It may take many months to gather all of this information. You may need to be patient. But knowing what to expect and what tests you may need can help you understand the process better.
Being diagnosed with epilepsy can be a time consuming and complicated process. You probably have lots of questions about what is happening and why. Click here to find answers to some of the most commonly asked questions about diagnosis.
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Just recently after having spent a few years in a fog under a treatment that I figured was the only one that was going to be effective for me because I'd been on it for so long I was just sort of used to the side effects.
Marion, France
The goal of epilepsy treatment is seizure freedom without intolerable side effects and this can be achieved for the majority of people.
It is important that you discuss how you are feeling with an epilepsy specialist. Your specialist can help determine whether you are experiencing medication side effects and how best to manage them.
Before deciding which antiepileptic drug (AED) is the right one for you, your doctor will look at various aspects of your life:
It is important that you take your medication as instructed to give yourself the best chance of controlling the seizures and being able to live your life to the full.
When you start treatment with AEDs this is what usually happens:
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We know sometimes it requires perseverance by working with their epileptologist to try different medications in various combinations before achieving optimal control with the most tolerable side effects too.
David, UK
Julie, United Kingdom
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