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The first thing is that in my family they don't speak about epilepsy so I first had to discover that I have epilepsy myself and I discovered by going to the library in secret because nobody may know it, my family don't speak about it, my doctor don't speak about it or my teacher don't speak about it so I go to the library in secret and read books about it and discover that I have epilepsy myself then. And when I was 18 years old I live on my own and make more and more my own decisions and go to another doctor and specialised epileptologist and had more time to speak with him and discover what kind epilepsy I have. Knowing more about epilepsy became a process to feel better having epilepsy, to discover what I can do and where the boundaries are having epilepsy.
What do you use as the sources of your information on epilepsy?
Judith, The Netherlands
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