What advice would you give to help others talk with their doctor more effectively?

First of all what would I give on advice is get them self informed. First, what kind of type of epilepsy they have. Get also general information on all types of epilepsy. Get also an overview of the terms, the medical terms, that are used - it's a jargon like in any profession. If you don't have the keys you don't know what they're talking about.

When a doctor talks to you about a "partial complex seizure" and you know you've never heard what is this, it's as good as Chinese so if you start by knowing it, learning what it is, you can have a better dialogue with your doctor. You can understand more easily what it is and you can ask him when he uses jargon that you do not understand say "excuse me but what does it mean exactly, you know, in English, and translate it."

And I think that's one of the first things - it's nothing much but it's very important and it's the beginning of something.


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