What advice would you pass on to other carers to help them?

I think every situation is different and I think adapting to a completely new lifestyle takes a lot of time so I think it would depend at what stage the family was at.

I think that my advice would be to try and talk to other parents if possible. I have a friend in Edinburgh who I email with and we speak on the phone occasionally and we just compare notes of new treatments perhaps or alternatives to medication. She is just about to start the ketogenic diet with her son, we're looking into Vagal Nerve stimulation with our son and I think it's a matter of finding out what's right for your child at that moment.


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