Your Epilepsy Specialist

Someone who will become incredibly important to you is your epilepsy specialist.

You will work closely with them and together find the best way to manage your epilepsy. It is therefore essential that you see them at regular intervals and work as a team.

Things you should remember:

• Keep a record of any seizures or problems with medication you have experienced since your last visit
  • Side effects that are having an impact on your day-to-day life
  • An increase in seizures
  • A new type of seizure
  • Your seizures last a longer time.
• Let your doctor know you want to be a partner in your health care
• Talk with your doctor about the optimal treatment for you
• Let your doctor know what your priorities are, for example:
  • "I'm studying for my exams and plan to go to college."
  • "Can I still play tennis for my local club?"
  • "I'm on the pill. Will my medicine affect this?"
  • "I'm planning on having a family in the next 2-3 years."
  • "I'm starting a new job."
  • "I'm having to take other medicines for my heart."
• Ask which medication would best suit your current situation.

It's very important to be prepared for a visit so here are a few quick tips:

• Be on time for your appointment
• Make a list of questions to ask and have answered
• Bring a list of the current medicines you are taking
• Bring along your seizure calendar to discuss any new symptoms or problems
• Ask questions if you don't understand what has been said
• Listen carefully to what your doctor says, bring a note pad to write things down to read later
• Let your doctor know if you experience any new symptoms or changes in your level of functioning - such as changes in cognition or emotional issues
• Don't be timid!